Feasibility of Care4Carers: a mindful parenting program for caregivers of children with 22q11.2 deletion syndrome

Parenting a child with special healthcare needs is associated with significant caregiver stress. Previous research has found that parenting stress and mental health impacts on outcomes for children with chronic illnesses. Despite this, the importance of managing parents’ stress is often overlooked in the management of chronic health conditions, such as 22q11.2 deletion syndrome (22q11DS). There is evidence to suggest that providing mindfulness training to parents not only reduces parental stress but can also lead to improvements in child behaviour. This study was designed as a non-randomised feasibility pilot study evaluating a mindful parenting program Care4Carers, specifically designed for those parenting a child with 22q11DS. There were 20 participants recruited to take part, which involved attending online group sessions for 2.5 hours for 8 weeks and practice exercises between sessions. Interviews were conducted with 12 participants after the completion of the program. Using attendance data and thematic analysis of semi-structured interviews, the study aimed to determine if the program Care4Carers would be experienced by participants as feasible and acceptable. Results indicate preliminary evidence of feasibility and acceptability, with adequate retention and themes emerging from interviews highlighting appropriateness of content, delivery and perceived benefits including personal growth, peer support and enhanced coping. ‘Barriers to engagement’ was also a theme, and possible adjustments are discussed based on participant feedback to further enhance the program. Further research using quantitative measures is required to confirm findings and investigate effectiveness.